CEREBRAL PALSY IT MAY NOT BE!!
What an eye opener - tonight on CTV late night news they showed
babies and children that at first MOST of the medical world
thought was cerebral palsy - a condition marked by weakness and
impaired coordination of the limbs, eps. cause by damage to the
brain before or at birth.
One mother wanting to get a second/third oppinion for her baby,
finally got to a specialist who wanted to investigate. This man
knows about a condition (the fancy words were given) that as he
said most doctors will not know or come across in their entire
Well it seems to act like cerebral plasy, BUT IT IS NOT!!
AND BETTER NEWS - this whatever it is called, can be treated.
There is a medicine that given 3 or 4 times a day - put the
person in full and complete cure.
The lady mentioned above, her boy is a normal healthy toddler
playing about as any normal healthy toddler.
They showed a girl before and then after (after taking the medicine)
- she was jumping and doing flips on a home backyard trapeze.
They said the results of this medicine can be literally overnight
results for those with, well what looks like cerebral palsy but it
So if you think you know someone that acts like they have cerebral
palsy you better have them checked out. BUT wow, what a story it is,
and that medicine, it fixed up the problem as quick as all get out.
My oh my, I'm amazed at what the human mind has discovered to cure
some physical problems that mascarade as another physical problem
we are only to familiar with - like cerebray palsy but it ain't,
and the medicine they have for IT will blow it away!!
So the world does have good things discovered and happening, but
sometimes it's YOU who have to push and seek and get more oppinions.
Ah, I did go to CTV news - Here is the report:
Rare condition sometimes mistaken for cerebral palsy
CTV News Video
A medical condition which causes painful muscle contractions that
is often mistaken for cerebral palsy can be cured, if properly
diagnosed, with four daily doses of a drug called levodopa.
CTV.ca News Staff
Sun. Sep. 19 2010 10:26 PM ET
An Ontario mother refused to accept her infant had cerebral palsy
and fought to get a second opinion. It turns out she was right --
he had another, easily treatable disease called
The condition is part of a group of illnesses that cause
repetitive and painful muscle contractions. It can be mistaken
for cerebral palsy, but unlike that disease it can be treated -
if patients get the right diagnosis.
At three months of age, Corinne Fewster Gagne's son Beckham
started showing symptoms of clenched fists, painful stiffness,
and uncontrollable crying.
"I was shocked," she told CTV News. 'The only question I could
think to ask at the time was, 'is my son ever going to be able to
She refused to accept the diagnosis and searched for a second
opinion, until she found a doctor who questioned it too.
Dr. Asif Doja, a pediatric neurologist at the Children's Hospital
of Eastern Ontario suspected Beckham might actually have a
curable condition called dopamineresponsive dystonia.
"I think dystonia is a rare disorder that many general
practitioners or pediatricians may not come across -- many even
in their entire careers," said Doja.
It turned out his suspicions were right: Fewster-Gagne's son did
have dystonia. Beckham was given four daily doses of a drug
treatment called levodopa.
"It was instant," said Fewster-Gagne. "He was calm, quiet and
relaxed. The pain was gone."
While the condition is rare. Beckham is not the only dystonia
patient to be falsely diagnosed with cerebral palsy. Dole thinks
educating doctors is the key to preventing further mistakes.
"Even though it is rare, there are some forms (of dystonia) which
are treatable," he said.
Beckham's mother said there could be other patients, just like
Beckham, who need the right diagnosis.
"Maybe its not as rare as its thought to be," she said. "And
maybe there's a lot of people out there that this drug therapy
would be a simple fix for."
With a report from CTVs medical specialist AVIS Favaro
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To be continued from time to time